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Welcome, friend. You are not alone!

The "DOC" aka Diabetic Online Community is HUGE and I completely encourage you to get Facebook smart,  and search groups, pages and even begin (gasp!) friending people you've never met or heard of before this diagnosis came your way.
That's what happened to us. And it was vulnerable and crazy weird, but I don't know where I would be without NATION-WIDE support! CHECK out THIS BLOG on "Life in the DOC", plus much more! @t1mom.com

This page is in "rough draft form" but here are some of the topics and brief discussions I've copy/pasted into mini-quick reads for you if you are new or love to research diabetes info...

How did they get diabetes? Can they predict this disease? What about my other children...?

They now have a blood test that shows 3 possibilities 1. Genetics 2. Auto-immune disease and 3. Crap shoot. That part of the pancreas just kicked out, no genetics pre or post...They are named scientifically the 1. GAD - Sean had a 65 antibody, 2. IA- he was 7.3 and 3. Insulin (Crap shoot. The only one he was neg for...) My dear friend had that kind. Currently his Celiac test and Thyroid are negative but both are closely watched as they typically go hand and hand with auto-immune type 1 diabetes. One reason they run blood work every 3mo. We could do clinical trials and get the other kids tested, but I have personally enough fear and anxiety as is! Plus one needs the environmental trigger. Like the flu. Which Sean most likely had last Sept 2011. The trigger part being flu is a widely assumed but recognized theory. So Sean is 2/3 positive for the blood work make-up, but had to have the trigger...Another answer to your question: if you or anyone you know sees signs of sudden weight loss, extreme thirst, frequent urination (at night it's more obvious in older kids...), headache/nausea (which I took Sean in for and retook him a day later when they took his appendix out...and extreme hunger (which I can't vouch for noticing it looking back on, either). Or difficulty breathing and/or vomiting.- (and these don't all happen together)... Shout out to a friend who may have a test kit for the finger prick blood glucose number test. Or buy supplies at Walmart. Better yet, don't just see your doctor. See ANOTHER one. We thought it was his asthma. We thought it was 7-9pm practices so he was extra dehydrated at bedtime. We thought maybe urinary tract infection? We thought he lost all the weight from being the first time in organized sports back to back...Then we thought he was dying. It was bad by the time we caught it. So Sean went to ICU and mommy has been on Facebook ever since ALL of that...(Nov 2- Jan 31 when finally diagnosed). Blessed to have this amazing boy whose name means "God is Gracious"!

LOOK at the LABEL for CARB COUNT and SERVING SIZES! Now here is an impromptu list/letter I wrote for a friend of mine...
There are squeezable packages that are like applesauce, etc. they will pack better than applesauce cups. They have a twist top and foil-like bottom. Great for lows! And quick sticks. Visit QUICK STICKS website or their FACEBOOK PAGE to order and receive coupons, etc! They are pixie sticks for diabetics. Like candy. Walmart and Walgreens. Keep OJ on hand. Never know when grabbing 4oz while in the kitchen is needed. Or to pack in a water bottle. Tiny juice boxes to keep by the bed and by yours, in the glove box/car and purse. But wrap in a ziplock for bags and purses! Any pharmacy is going to have a diabetic section. You CoULD see if she has a taste for the glucerna shakes. Good protein/carb snack. Speaking of...check out he special K bars the nature valley protein bars, even the honey oat- half is a snack (15g carbs) while the other half can go to another kid. The Fiber One bars. Cheerios are a great low carb. Even the fruit and cinnamon ones. Go for baked chips. The special K ones, wheat thins and cheese nips. Even REGULAR LAYS yellow bag plain old potato chips are the lowest carb or "POPS" brand u know the rice​. AND BEEF JERKEY!

OMG, I have to go to the grocery store!

FOOD TO PACK for an outing...

ANTICIPATE LOWS: Mini bottles of Gatorade to sip on as they walk walk walk and play? (or put OJ in them) I love Quicksticks coz they are water proof-ish packaging...Walmart and Walgreens carry and my son has one in his pocket always. I've found applesauce packages get smushed. So do juice-boxes unless wisely packed...and we are huge carriers of nature valley protein bars, special K bars, FiberOne bars (the carb/protein ratio is awesome.) and the JIFF PB to go packs well with an apple!

AND SCHOOL SNACKS! EASY ON CLASS TIME & in-between snacks!: Special K, Fiber One and Nature Valley all make great Protein bars depending on your carb ratio needs- and yet the Oat and Honey etc ones from Nature Valley- 1/2 is 15...also wheat sticks- in the Chinese box and nacho cheese or PB to GO slice apples and sprinkle lemon juice or milk to keep from browning. Apple chips, even...pretzels, cheezits, string cheese and packit.com means you don't need to worry about ice packs! There are those fruit in the squeeze packs like the foil-ish capri-sun material- colorful tops... not all have the palate for that- use straws for applesauce or danimals...beef jerkey if too high, it's "free"...

Attending SCHOOL...what if it's hard? I might homeschool...

Anticipate absenses: With Sean he went into major depression from being on home hospital and HIGH blood sugar levels for so long. (6 weeks on steroids from a viral lung infection)...It started messing with him. So he went to a therapist, and we had long talks about all this...Sean's friends are beyond his life-line now at school. They are the reason he goes. And the reason he comes home! (so they can all meet up in front of our house for a football game...) His school buddy even bought him Quick Sticks...He gets his joy back from being there...so I just went and finalized a 504 1/9/13 for him. I've been trying since school started. So It felt good good to get done. But like yesterday and today he just was not himself! But his ratio changed AGAIN. He is barely on insulin. What a (honey) 'mooner! And as of Feb 1, 2013 he went on independent study, after all. But the 504 translates to any school and grade level from this point on! 

What is "normal"...?

There is no normal. Welcome to T1. And the honeymoon is no walk in the park, always, either.  You'll know you're leaving the moon when numbers go high despite good carb counts and accurate doses... We had a freak night with random highs without explanation. It drove me bonkers. I want to KNOW. I want to FIX! Diabetes has no respect for my desires sometimes, I swear...

Tween/teen independence...

Sean best friends house of 3 years began trying to care for him so he could stay through meals and snacks. See, every he comes home low from not snacking while exercising, he's been "restricted" from going anywhere and everyone must come here instead...That got OLD quickly, so Sean finally earned another try "out". Just the other night he went and it we carb planned with the adult there the dinner/dessert, packed his snacks, breakfast and drinks; and had a 30 min talk before leaving. And I wrote a novel on paper. Then the supervising adult called me a few times without him knowing to assure me all was well. THe next morning she goes, "I know it wasn't totally necessary because his numbers were all on target and it was all good, but I did check on him at 3am..."   My heart melted. I responded tearfully, "Oh my God, I love you." That was just this time. Days later he forgot to take a corrective dose and didn't account for a snack too high in carbs and I happen to call and was there to pick him up 5 min later. "You're disciplining me," Sean exclaimed! "Yes, not punishing you. Exactly son, I'm helping you correct yourself so this doesn't happen again," was my reply.

Know your kid, know his/her day, and know your limits as well. There are many factors that go into when you take the reigns, and when you must be proud and encouraging, and THEM take on this disease. ESPECIALLY when they take initiative. (Our latest example I'd prefer staying on shots, but my tween is ready for a pump so I support HIM taking control of HIS disease...it's age appropriate timing!)

Party time: is alcohol safe?

(This page is updated and revised frequently as I learn, absorb and edit... )

Today I’m going to teach you how to get wasted safely. I’m not saying you should. I’m not saying I want you to. But if you are going to, I want you to know the dangers, and I want you to know how to do it right.
Why? Because no one else will frickin’ tell you. Your parents won’t. Your grandparents won’t. Your doctors won’t. Your educators won’t. Your teachers won’t. Your priests won’t. But I will.

Alcohol supersizes your insulin and sets you up for epic lows hours later when you’re likely to be asleep. It blunts your ability to feel those lows, and slows down your recovery if you do feel them and are sober enough to deal with it. But you can lower your risk of all of those scary things by thinking and planning ahead and…Oh, crap! I forgot to tell you about the Zombies.

What are "Keytones" & "DKA"?!

Keytones place a diabetics body into "Diabetic Keto-acidosis" which is fatal if left untreated for too long. It is organ failure. When our T1's get sick, ANY kind of virus/bacteria infection can place their sugar levels too high or too low for so long that they begin to produce "keytones". This is when we get going to the hospital... Our friends Stella and Major the Diabetic Alert Dog had a great explanation on their page for this condition put into their own words from an article Stella's dad, Frank, read on the JDRF website:

"Learning opportunity! So what exactly are ketones? When the body is unable to burn glucose it burns fat and this produces a chemical called ketones. This occurs when there is too little insulin for the amount of glucose in the body. It happens a lot when the diabetic gets sick, runs a fever, and isn't having a normal food intake, like Stella is doing right now.

Now, why is this bad? Well, if left untreated, ketones continue to rise and can result in a condition called Diabetic Ketoacidosis, or DKA. This condition is quite serious and requires immediate medical attention. DKA is the most common cause of hospitalization and death among children and young adults with diabetes.

So now we are very closely monitoring Stella, and trying to flush her with Gatorade and liquid carbs, as just like when you are sick, she isn't very hungry, but we need to be able to give her insulin."

from: Major and Stella's page

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